Wednesday, June 29, 2011


Today was the first time the hemotologist mentioned the word "stable" in regards to Nolan. "Holding his own" was another one.

His count was 339,000; a slight rise from last week. He is 6 weeks post WINRHO treatment. By now there would most likely be a drop-off. The medication is out of his system and his body is doing what it needs to do. With that said, ITP is its own beast and that could change tomorrow, but we are hopeful Nolan is not going to be "chronic ITP" and this was a one time ordeal.

We are hopeful he is in that 80% this time.

Keep those platelets going, buddy. "To infinity and beyond!"

Saturday, June 18, 2011

The Safety Dance

One of my favorite childhood memories was going to Safety Town. It was an actual town built in a fenced in area of the elementary school playground. I remember feeling so important because the mayor (Morris Becker, if you grew up in Eastlake) came and gave us our certificates.

The twinadoes did Mentor's Safety Town recently. Sadly, our fair city no longer has programs like this due to poor money decisions in the 1990's.

They seem to have enjoyed themselves and were excited to go every morning. There were no tears or prolonged goodbye's, just a quick kiss and off they went. I guess I should be happy they are so well-adjusted, huh?

On Day One, they were sitting in the classroom while the teacher explained some things to the parents. I looked over at my boy and this was his look. Total boredom. I suppose this will be his standard look all through school.  He wanted out of that classroom and on the town to ride the big wheels we had seen when walking in.

Day 1: Traffic Safety/Water Safety

Day 2: Fire Safety/Poison
Day 3: Police/Bike Safety

Day 4: Bus Safety/Stranger Danger

Day 5: Graduation

Wednesday, June 15, 2011

Drumroll Please....

329,000 and blood draws moved to every other week!!!

I know after (too) much research that nothing is predictable with ITP and the bottom can fall out at any time, but I've just got to keep hoping that isn't going to happen and he is on the road to recovery.

He feels fine, he is acting fine, he certainly looks fine.

Again (and again and again) thank you for all your thoughts, prayers, and cards. It means a lot to Bill and I.

Thursday, June 9, 2011


Yesterday's count was 214,000! Maybe Nolan's body is finally doing what it needs to do instead of eating platelets faster than he could make them. Only next week's blood draw will tell, but this little increase with no treatment is a good sign.

So, keep doing what you are doing and hopefully Nolan's body will do the same.

Monday, June 6, 2011

Here Come The Butterflies

For Easter, Reagan got the butterfly habitat she was so desperately wanting.

About 2 weeks ago, the larva arrived and they set up house. It was amazing how quickly they grew and then after about a week, they climbed to the top of the jar they had come in and turned into chrysalids.

They have just been hanging around on the side of the habitat for another week and yesterday I noticed one was breaking through. It is an interesting process to watch. I remember doing this in first grade as our final project for the year. However, I do not remember there being blood when the butterfly emerges.

This morning I noticed another butterfly trying to break free. We took a break from our morning chores (emptying the dishwasher for me; watching Curious George for the twinadoes) to watch.

Yesterdays butterfly started crawling up the side of the habitat and we watched the other one flap its wing trying to break free. Amazing.

I know you are surprised, but I had my camera. Nolan went to get his, of course, it was nowhere to be found. (Nolan has trouble putting this back where they belong. Sure, he picks up his mess, but who knows where it goes.)

Reagan found hers and starting taking pictures and asking me if she "had the right angle". Meanwhile, Nolan starts this radio announcer type voice, saying, "folks, we are watching it as it happens!"

Just another morning at our house.

Saturday, June 4, 2011

Prayer Pics For Nolan

My friend, Tonia in Jupiter, FL sent these pictures to me. They are made from palm fronds.

They came at a moment when I needed them most, just after finding out Nolan's counts had dropped this past week.

So, Tonia, thank you!